It has been almost a week since Meredith had her shunt removed, and praise God she has had no symptoms indicating a regression of any kind. It is still possible for swelling to occur but God willing that won’t happen. Everything seems to be headed in the right direction.
When compared to the progress she made when she first came home the progress that she’s making now seems to be in larger strides. She is still a long way off from where we all want her to be, but between the therapies, time at home in a “normal” environment, and a lot of blessings from God she is moving in the right direction.
We are also in the process of tapering the last of her medications. She has been on some form of steroid for about 9 months. I don’t know a whole lot about steroids and their effects on the human body, but from people who know more than me they say it is not a good thing to be on steroids if you can help it. So, hopefully by early December (if not sooner), she will have weaned off of the steroid and she will essentially be medication free.
Considering that she still has the tumor (as of the last MRI scan in August) and she still has a long road to neuromuscular recovery, I think that it’s pretty darn amazing that she doesn’t need any medication.
On another note…Malcolm has developed a fever that got as high as 103.8 last night. The good news is that it responds to Tylenol, so I haven’t panicked yet (I was considering an ice bath instead of medication, but thought better of it).
Maura continues to learn words at a typical almost-two-year-old pace. So, if you happen to see her, be sure to watch what you say. Or, if you prefer a challenge, I would love for my children to have a rich vocabulary and an inquisitive mind, so use plenty of multi-syllabic words with complex meanings. Of course, if you do that, be prepared to do a lot of explaining to an attention-challenged 21-month-old.
Merlin…well, he and I went to the dump yesterday. He loves the dump (who doesn’t?). He scored because not only did he get a treat when we brought our trash, but he got another one when we brought Papa’s office trash. Lucky dog.
Your prayers, thoughts, and generosity have been tremendous and I pray that God will bless you each in a mighty way. Take care and God bless.